Dies at 33 After Nearly 7-Year Battle with ALS
Dies at 33 After Nearly 7-Year Battle with ALS Leah Stavenhagen, founder of the nonprofit **Her ALS Story**, has died at the age of 33, nearly seven years after being diagnosed with amyotrophic lateral sclerosis (ALS). Her death was announced on Sunday, Feb. 22, in an emotional Instagram post shared by her organization. The tribute described her as a “fearless leader,” a trailblazer, and someone who created a powerful community for women facing the same devastating diagnosis. Stavenhagen was diagnosed with ALS in 2019 while working as a consultant in Paris. At the time, she was living with her partner, Hugo Taubmann, whom she later married after her diagnosis. In April 2021, about two years after learning she had the terminal illness, she launched ****. The nonprofit was created to support young women diagnosed with ALS before the age of 35 and to challenge the misconception that ALS only affects older white men. The organization shares perso...